Rex and Simone welcomed a beautiful baby boy into the world, only 3 months ago, Boston George De Castro. After a recent bone marrow biopsy, Doctors diagnosed Boston with a rare, life threatening disease; Hemophagocytic Lymphohistiocytosis (HLH). It is a severe systemic inflammatory syndrome that can be fatal.
As you know, Rex and Simone also have a beautiful two year old daughter, Beatrix, who has also been diagnosed with an extremely rare disease, Neutropenia. The last two years have been filled with multiple hospitalizations and worries, that no parent should have to go through.
We hope this page not only provides some monetary relief to the stress and costs associated to living in hospital, but even more, the need for a Bone Marrow Match!
If you are between the ages of 17-35, and especially if you are of mixed race, please consider being put on the donor list for stem cells. Stem cells are based on ethnicity, so mixed people are under represented for possible matches. Sometimes less than 1% chance of finding a match, just due to low donors of mixed race. Boston is Filipino and Caucasian, but even if you aren't mixed, there may be a chance you could still be a match for him. Click the link to see if you would be a match for Boston http://www.blood.ca/Match4Boston for US or international register at bethematch.org
- Marcie Hinds
- Daniel Berish
Organizador y beneficiario
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